1
Research and Prepare
Know the condition, and know your own history
What lipoedema is, what it looks like, and how it differs from obesity, plus the two things worth writing down before you see anyone.
Free Short Learning Program
Self-AdvocacyGetting To Diagnosis & Treatment Faster
A short, practical course for women with suspected or early stage lipoedema who are tired of being dismissed, delayed, or told to come back later.
I built this from my own long road to diagnosis. These are the things I would do differently, in the order I would do them.
- 3 short lessons
- About 20 minutes
- Printable workbook included
- Free
What the course covers
Three short lessons, each ending with the actions to take next.
2
Finding Your Care Provider
Getting in front of someone who knows what they are looking at
Who can diagnose lipoedema, how to find someone experienced in your area, and what to ask when you do.
3
Testing and Documenting Treatments
One change at a time, with notes you can show
How to run a fair trial on a treatment, and how to keep notes that support your next referral.
Who it is for
- Something is changing in your legs or arms and nobody has explained why.
- You have been told to lose weight, or that it is just fluid, and you know it is more than that.
- You have a diagnosis and want to get organised about treatment.
- You are supporting someone who is trying to be heard.
In the printable workbook
- My five-line story, ready to take to any appointment
- Your questions to ask, written out so they cannot be talked past
- Plan on one page: what, who, when, and how we will judge it
- A 14-day tracker for testing one treatment at a time
- A shortlist of doctors to call
- A full symptom log and timeline
Where should I send it?
Enter your email address and the course and workbook open straight away, with a copy sent to your inbox so you can find it again.
This guide is general education, not medical advice, diagnosis, or treatment, and it does not replace care from your own clinician. If your symptoms are new, changing, or getting worse, please speak with your doctor.