Understanding Lipoedema Symptoms

Recognising the signs and distinguishing lipoedema from other conditions can put you on the path to clinical diagnosis, and help you take control of your health. But while self-diagnosis can be a helpful first step, it's important to also seek a clinical diagnosis to confirm the condition and rule out other potential issues.

By learning how to identify lipoedema at home, you can better understand your symptoms and take the necessary steps towards managing the condition.

Self diagnosis

Start here

1

Watch and learn

See what to look for with Dr David Amron and Dr Karen Herbst.

Watch the videos
2

Record your symptoms

Work through Lipoedema Australia’s checklist so your symptoms are ready to describe.

Get the checklist
3

Find your type and stage

Compare the shape of your body against the five types and four stages.

View types and stages

Self-diagnosis is a legitimate and often necessary first step. Because many doctors are still unfamiliar with lipoedema, knowing your symptoms and where your body changes sit on the types and stages makes a real difference. A clinical assessment can then confirm what you have found and open the door to the right care.

Self-Diagnosis: Recognise the Signs

To accurately identify lipoedema at home, you need to become familiar with lipoedema symptoms, causes, types and stages. Use the Self Diagnosis Video below by Dr David Amron to assess your body for lipoedema, and use the Symptom Checklist from Lipoedema Australia to record your symptoms for your doctor. Then scroll further for detail on the Types and Stages of Lipoedema to get an early understanding of which type and stage you may have – your doctor will also assess this during clinical assessment and diagnosis.

Self-Diagnosis Videos

Great How-To videos by Dr Amron and Dr Herbst.

Symptom Checklist

Click the image below to download Lipoedema Australia's fantastic Symptom Checklist.

Lipoedema Australia symptom checklist to discuss with your doctor

Types of Lipoedema

There are 5 types of lipoedema categorised by the area of the body they impact and it’s not uncommon to have a combination:

Lipoedema Type 1 illustration showing affected tissue between the navel and the hips

Type 1

Build up of lipoedema tissue between the navel and hips – pelvis, buttocks and hips. This type has a distinctive ‘saddlebag’ appearance.

Lipoedema Type 2 illustration showing affected tissue from the buttocks to the knees

Type 2

Buildup of lipoedema tissue from buttocks to knees, with folds of fat around the inner side of the knee. More common than Type 1 and causes swelling and fat buildup from the waist to the knees.

Lipoedema Type 3 illustration showing affected tissue from the buttocks down to the ankles

Type 3

Buildup of lipoedema tissue from the buttocks to ankles. Most common type found in women and affects the entire lower body which causes it to become disproportionate to the rest of the body.

Lipoedema Type 4 illustration showing affected tissue in both arms

Type 4

Buildup of lipoedema tissue in the upper arms, lower arms or both.

Lipoedema Type 5 illustration showing affected tissue in the lower legs

Type 5

Buildup of lipoedema tissue in the lower legs i.e calves.

It’s common to have a combination of types, most often Type 2 & 4 or Type 3 & 4.

Stages of Lipoedema

Lipoedema is a progressive condition, which means it gets worse over time if left untreated. The progression is broken down into 4 categories:

Stage 1 lipoedema illustration showing early changes around the pelvis, buttocks and hips

Stage 1: Early stage lipoedema

  • Increase in fat accumulation around the pelvis, buttocks, and hips
  • Swelling worsens throughout the day but typically resolves with rest and elevation
  • Skin often remains smooth
  • Symptoms such as pain, excessive bruising, heaviness and swelling can be mild, moderate or severe with this stage
Stage 2 lipoedema illustration showing changes extending from the hips down the legs

Stage 2: Mid stage lipoedema

  • Skin starts to develop indentations
  • Subcutaneous tissue feels tougher and more nodular
  • Lipomas, or fatty lumps, may be present
  • Fat buildup becomes more noticeable on the upper and lower legs, extending towards the ankles
  • Swelling is often more significant in this stage
  • Swelling is less affected by rest and elevation compared to Stage 1
  • Symptoms such as pain, excessive bruising, heaviness and swelling may be mild, moderate, or severe with this stage
Stage 3 lipoedema illustration showing pronounced tissue changes in the thighs and knees

Stage 3: Advanced stage lipoedema

  • Further hardening of connective tissues and persistent swelling that does not resolve with rest and elevation
  • Large extrusions of fatty tissue cause thigh and knee deformations, impacting mobility and quality of life
  • This stage may also be associated with the development of secondary lymphedema or secondary obesity
  • Stage 3 lipoedema has the highest rate of orthopaedic complications
  • Symptoms may be mild, moderate or severe with this stage
Stage 4 lipolymphedema illustration showing overhanging tissue on the legs and arms

Stage 4: Lipolymphedema

  • Both lipedema and lymphedema are present in the body
  • Large overhangs of tissue on legs and/or arms

Ready to take the next step?

Once you've assessed your symptoms, learn how to build a plan for diagnosis and treatment.

Make A Plan

Free short learning program

Need help getting a diagnosis?

Self-advocacy is simply knowing what to say, and what to show, so your symptoms are taken seriously. Our free Self-Advocacy program walks you through it in a few short lessons, with a workbook you can take to your appointment.

Start the free program

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